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London Diary
Work and pleasure I am a part of the aHUS Alliance which is an umbrella organisation for all aHUS Patient Organisations from all around the globe. I represent India through the Atypical HUS India...
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Appreciate the value of good health
I had just got back from London a few days back. I suddenly developed some breathlessness. My fluid weight gain was under control. Everything else seemed normal. I visited the nephrologist who...
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Being Mortal: Medicine and What Matters in the End - Atul Gawande
I recently finished reading this book. I had read Atul Gawande's earlier two books - Better and The Checklist Manifesto and had been impressed by both. This book also has the familiar Gawande style -...
View ArticleFistulas and fatal haemorrhages: what to do
In February 2010, I wrote Dialysis: death via a damaged fistula, which was about Maya’s father, who died when his sore and swollen fistula burst in bed and he bled to death. At the time I asked some...
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Updates from the aHUS UK and aHUS alliance meetings in London
I attended the aHUS UK patient meeting and the aHUS Alliance meeting in London during the last week of June. I learnt a lot of new things about aHUS. I am going to summarise the learnings here. The...
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I will always regret not taking up medicine after my 10th
I was at one our dialysis centres this Saturday afternoon. This centre is inside a hospital. I did my usual round of the centre, talking to a few guests, inspecting the facility and then settled down...
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Announcing India's first Atypical HUS Registry!
Atypical Hemolytic Uremic Syndrome is an ultra-rare disease affecting a small number of patients world-wide. This devastating disease affects children and adults and without proper management and...
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MSCs help us Reject Rejection
The light of rejection-free, healthy kidney transplants has entered the tunnel, and should arrive at our end in just three to five years. Last month a senior researcher from the Cell and Tissue...
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A possible solution to end Parliament disruptions
The recent Parliament session was a complete wash-out. Disruptions by the opposition, led by the Congress prevented important bills from being passed. Apart from the huge loss of money incurred by...
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Don't blame us for being 'non-compliant' - it is you who have failed us
In a brilliant blog post on Home Dialysis Central, Dori Schatell of the Medical Education Institute says: "At the NKF Spring Clinicals meeting in March, a comment I was told that someone made at the...
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